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What support is there for parents and carers with children who have cerebral palsy?

Cerebral Palsy is a complicated neurological condition and its symptoms often differ from person to person. At Hudgell Solicitors, we understand that cerebral Palsy symptoms can put great strain on both the physical and mental health of those affected by the condition.

If your loved one has been diagnosed with cerebral palsy, there are many charities and UK support groups offering practical help and impartial advice.

Here is a list we have put together where you may be able to find support on a local and national level.

UK cerebral palsy support groups

Scope

Scope, a charity serving England and Wales, aims to ensure disabled people have the same opportunities as everyone else. They provide support, information and advice to thousands of people and the families affected by cerebral palsy every year.

Website: https://www.scope.org.uk/advice-and-support/cerebral-palsy

Call: 0808 800 3333

Email: helpline@scope.org.uk

Brain & Spine Foundation

The only UK-wide charity providing information and support for every one of the 350-plus neurological disorders which affect more than 12 million people in this country – including cerebral palsy.

They provide tailored information and specialist support for those affected by neurological problems at every stage, from first cerebral palsy symptoms, diagnosis, treatments and in the long term. They also offer support to family, friends and carers.

Website: https://www.brainandspine.org.uk/

Call: 0808 808 1000

Email: info@brainandspine.org.uk

The Silverlining Brain Injury Charity

Silverlining provide free and low-cost activities and events for anyone affected by brain injury as a way of invigorating, motivating and rehabilitating them. Friends, family members and loved ones are encouraged to get involved to help rediscover a sense of purpose, social structure and meaning in their lives.

Website: http://www.thesilverlining.org.uk/

Call: 0203 174 2051

Email: admin@thesilverlining.org.uk

The United Kingdom Acquired Brain Injury Forum (UKABIF)

This national charity was set up to help people with acquired brain injury gain early access to good quality local, specialist rehabilitation and follow-up services.

They also provide those affected and their family or carer with access to information, support networks and educational resources.

Website: https://www.ukabif.org.uk/

Call: 0845 608 0788

Email: info@ukabif.org.uk

Action Cerebral Palsy

Established in 2013, Action Cerebral Palsy tries to raise awareness of the issues facing children and young people with cerebral palsy, and the effect it has on their families. Its aim is to deliver a better deal for the entire CP community by improving public, professional and political awareness of the condition.

Website: https://www.actioncp.org/

Email: info@actioncp.org

The Brain Charity

The Brain Charity offers emotional support, practical help and social activities to anyone affected by cerebral palsy and their family, friends and carers. Established in 1993, its overall aim is to help people with neurological conditions to live a longer, healthier and more active life.

Website: https://www.thebraincharity.org.uk/

Call: 0800 008 6417

Email: info@thebraincharity.org.uk

Brainwave

Brainwave improves the lives of children with cerebral palsy and other disabilities by helping them achieve greater independence. The charity uses educational and physical therapies which can improve mobility, communication skills and learning potential. They work alongside families to devise a programme tailored specifically to an individual’s needs.

Website: https://www.brainwave.org.uk/cerebral-palsy

Call: 01278 429089

Email: enquiries@brainwave.org.uk

Mencap

Mencap helps thousands of people with a learning disability to do the things they love. Every year, the charity provides information and advice to people with cerebral palsy, their families and carers via its Learning Disability Helpline.

Website: https://www.mencap.org.uk

Call: 0808 808 1111

Email: helpline@mencap.org.uk

DIAL Network

The Disability Information and Advice Line (DIAL) is a team of experienced experts who want to improve all aspects of daily life for people with a disability, such as cerebral palsy. It provides information, advice and support on all aspects of living with a disability to those who are affect, their families and carers.

Website: https://www.dialuk.info/

Call: 0808 800 3333

Email: helpline@scope.org.uk

Cerebra

Cerebra aims to make life better for every child with cerebral palsy, and those with other brain-related conditions. It conducts research in a bid to inspire innovation, and provide support directly to children, their families and carers so they can discover and experience a better life together.

Website: https://www.cerebra.org.uk/

Call: 0800 328 1159

Email: enquiries@cerebra.org.uk

The Bobath Centre for Children with Cerebral Palsy

Bobath specialises in providing individual therapy for children and adults with cerebral palsy and similar neurological conditions to improve their independence, health and wellbeing. It uses both physios and speech and language therapists so parents and families can understand and manage the condition in all its forms.

Website: https://www.bobath.org.uk/

Call: 029 2052 2600

Email: trustees@bobath.org.uk

Brain Injury Group

This group’s mission is to support individuals and families affected by brain injury with access to legal, financial and welfare services delivered by proven experts with specialist skills and knowledge.

Known for its passion and dedication in this specialist field, it can offer expert legal advice or provide a gateway to various support networks – including information about statutory funding or welfare benefits.

Website: https://www.braininjurygroup.co.uk/

Call: 0800 612 9660

Email: info.services@braininjurygroup.co.uk

NICE – The Foundation for Conductive Education

Established in 1986, this charity believes that every person with a movement disorder – such as cerebral palsy – has the potential and right to specialist services which recognise their needs, desires and wishes. It offers a comprehensive range of specialist movement-based programmes to teach people with disabilities the skills needed for an active and healthy lifestyle.

Website: https://conductive-education.org.uk/

Call: 0121 449 1569

Email: foundation@conductive-education.org.uk

Contact – For Families with Disabled Children

Contact is a UK-wide charity offering advice and support to the parents of every disabled child – including those with cerebral palsy. No matter what the disability or health condition may be, they believe life can be improved if families and carers receive the best possible guidance and information.

Website: https://contact.org.uk/

Call: 0808 808 3555

Email: info@contact.org.uk

Carers UK

Anyone who provides unpaid support to a relative, partner or friends who is chronically ill, disabled or frail can receive help and advice from Carers UK, the country’s only national membership charity for carers. No matter how complicated your circumstances may be, you’ll no longer have to care alone.

Website: https://www.carersuk.org/

Call: 0808 808 7777

Email: info@carersuk.org

Carers Trust

Carers Trust is a charity which champions the work of all carers and ensures they receive grants so they can get the extra help and support needed to live their own lives. It works with people of all ages and conditions, providing access to group activities, breaks, information, education, training and employment opportunities.

Website: https://carers.org/

Call: 0300 772 9600

Email: info@carers.org

NHS Choices – Cerebral Palsy

NHS Choices is a comprehensive information hub which provides useful help and advice on all aspects of cerebral palsy – its causes, symptoms and treatments.

Website: https://www.nhs.uk/conditions/cerebral-palsy/

UK Government Benefits for Carers

This is the official Government website where details can be found for all of the benefits and services available to UK carers.

Website: https://www.gov.uk/search?q=carers

Special Stars Foundation

A charity which focusses on improving the quality of life for people with disabilities and their families in Hull and East Yorkshire by providing a diverse calendar of inclusive social activities in which disabled people of all ages and abilities can participate in. Subsidised physiotherapy and a range of support, training and advice services for parent carers is also provided.

Website: https://www.heyspecialstars.co.uk/

Call: 01482 227657

Email: info@heyspecialstars.co.uk

Regional cerebral palsy support groups

Get expert help and advice, find the cerebral palsy support group nearest to your home!

Cumbria – www.cumbriacerebralpalsy.net

Hull and East Yorkshire – www.cerebralpalsyhull.org.uk

Lincolnshire – www.lincolnshirecerebralpalsy.org.uk

Burnley and Rossendale – https://bprscope.org.uk/

Sheffield – https://www.pacessheffield.org.uk/

Liverpool – www.charitycheckout.co.uk/charity/liverpool-cerebral-palsy-society

Leicestershire – https://www.stepscentre.org.uk/

Stockport and East Cheshire – www.stockportcp.co.uk

Manchester – http://www.manchestercpsociety.btck.co.uk/

Birmingham and Midlands – www.cpmids.org.uk

Coventry & Warwickshire – http://cptodayincovandwarks.org.uk/

Northamptonshire – http://www.cerebralpalsynorthamptonshire.co.uk/

Thurrock and Essex – www.tdcps.co.uk

Bedford and District – www.bdcps.org.uk

London (Muswell Hill) – http://cpotential.org.uk/

London (Southgate) – https://www.facebook.com/adultcphub/

London (Croydon, Sutton & Bromley) – https://garwoodfoundation.org.uk/

St Albans – http://starscope.org.uk/

Surrey – http://www.whitelodgecentre.co.uk

Shropshire and Telford – www.shropshirecerebralpalsysociety.co.uk

Bristol – http://www.cerebralpalsyplus.org.uk/

Brighton – http://www.whoopsadaisy.org/

West Sussex – https://dvlcc.org.uk/

Winchester – http://www.winchesterscope.org/

Scotland – https://cerebralpalsyscotland.org.uk/

Wales – https://www.bobathwales.org/

Hudgell Solicitors

There are many possible causes for cerebral palsy, but the injury often occurs as the result of medical negligence during or before birth. At Hudgell Solicitors, we help families to thoroughly investigate why their loved one has been affected – uncovering the truth and answers they deserve.

Website: https://www.hudgellsolicitors.co.uk/medical-negligence/birth-negligence/cerebral-palsy-claims/

Call: 0808 231 7988

Email: cjm@hudgellsolicitors.co.uk

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